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Monday, August 13, 2007

Dignity

malcolm and barbara

Oh how the "row" that broke out about Paul Watson's documentary Malcolm & Barbara: Love's Farewell irked me the week before last. It risked engulfing what was a beautiful and harrowing programme - a victim of the ongoing "fakery" witch-hunt, which has got so out of hand. (At least it was ITV being in the dock this time, and not the BBC - the newspapers' usual whipping boy in all this.) The "issue" was the implication made in Watson's narration that we were seeing the final moments of Malcolm Pointon's life as he faded away after 15 years of Alzheimer's, at home, in his wife Barbara's arms. It transpired that what we were actually seeing was Malcolm drifting into a coma, from which he would not recover. He actually died three days later, off camera. Now, on a technicality, I can see why ITV was forced to overreact and order the usual enquiry, but at the end of the day, indeed at the end of a life, does it actually matter whether we are seeing a man's death, or a man slipping into a coma?

Paul Watson is a filmmaker of immense moral fibre who seeks to show us what we might wish to turn away from. This film was made over 11 years with the full blessing of Barbara Pointon and, in the early stages of diagnosis, by Malcolm Pointon. This was no easy film to make, and no easy film to watch. Anyone leaving their TV comfort zone to do so will have witnessed an unforgiving slide of one man into dementia, torment and eventually helplessness. Although to see Malcolm concentration-camp thin, a shell of his former physical self, being hauled out of his bed in a harness, unable to speak or feed himself, was horrifying, it was the early stages of the disease, in 1996 and 1997, that were the most disturbing, as his speech went through its transformation into babble, and it wasn't that you couldn't understand the words he was saying, merely that you couldn't understand the sense of them. Oh, you could throw the usual barbs: that it was a middle-class man who got an 11-year film made about him and not a working class one (he played the piano, was a lecturer, once had a show on BBC radio about music), but the condition itself knows no class prejudice, and although his piano skills featured heavily (he could still play when he had stopped making sense verbally), the misery suffered by his loyal wife Barbara was not made easier by their comfortable house. Put into respite care, Malcolm was given increased medication that took away his ability to walk, without Barbara being consulted, so she took him back home.

In the end, this was not a film about Malcolm, so much as a film about Barbara. Sadly, we couldn't hear from Malcolm, as he disappeared into himself, sentenced to take out his frustration on the world with uncharacteristic violence, so it was down to his wife, marooned without him but unable to leave, to explain what Alzheimer's does to people. She was strong, yes, selfless, noble, patient, but she was honest, and admitted she would like to be with someone else after Malcolm had gone, and was candid enough to admit that she missed the sex. (His drugs made him impotent.) Barbara allowed Watson to film her self-medicating with a few gins at night, and crying at the memory of a trip out on she and Malcolm's anniversary to a special place from their past that he seemingly had no recongition of. (This, of course, is an assumption. He may have recognised it quite well, but he was unable to express this in any conventional way. Barbara's pain was something we could identify with, but she appeared on occasion not to credit her husband with cognition, simply because he didn't appear to understand where he was, or what he was supposed to be doing. I expect this is a common reaction to an alien experience.)

An immense, moving piece of work from a real documentarian. (I actually don't know how Watson affords to live, his films seem to come so infrequently, by their nature.) How sad that the salacious need of an imagined public to see a man die on camera came between us and it. Watson re-worded one line of the narration, so that the emotive phrase "journey's end" was excised, and all was well. In that, all was not well.

6 Comments:

At Mon Aug 13, 03:48:00 PM , Blogger The Mighty Pierre said...

My understanding was that ITV executives hyped this up by making the claim that they filmed the actual moment of death. they did it to cynically provoke debate. Then when they were proved liers about this they had to apologise. To the film maker and Barbara and her family I hope.

So they really are not blameless in this row. the fact that it has got caught up in the whole honest TV debate is just a bye product of the usual media hysteria once they has the bit between their teeth.

As for the film I am sure it was very good. But having watched my Grandpa die of it, seen what it did to my mom and having worked in the field for ten years I could not face it.

 
At Mon Aug 13, 04:13:00 PM , Blogger Andrew Collins said...

I totally understand, Pierre. For anyone without any prior experience of the condition, I'd say it was a must.

 
At Mon Aug 13, 05:39:00 PM , Blogger Clair said...

I was going to blog about this myself, as my father had Alzheimer's, and looking after him led, I believe, directly to the death of my mother. But that was 13 years ago, and time has neccessarily blunted the memories of what a cruel illness it is, and I suppose for anyone who has experience of Alzheimer's, we just sigh in recognition and appreciate a 'happy ending' of sorts when Malcolm finally dies. I couldn't get quite so worked up, as I'm afraid I've been there, but I do still get extremely angry about the lack of help for carers, and the fact that NICE do not allow Aricept to be prescribed, but other, non-essential procedures are carried out by the NHS.

The programme did, at least, make me appreciate the fact that my dad died before he ended up like a waxwork skeleton of himself, and that his last words to my mother made sense - 'Is that the wonderful Alice I married all those years ago?' Things like that make a big difference to your memory of such an awful experience.

 
At Mon Aug 13, 09:25:00 PM , Anonymous Anonymous said...

It terms of a grown up and aware society, one programme like this is worth three months of Big Brother.
This was 'reality' TV at its finest although I did not 'enjoy' one second of it. But was I moved, did I end up with better understanding, was I educated? Yes.
AnonoNick

 
At Mon Aug 13, 09:35:00 PM , Blogger domboy said...

I haven't seen this, but I have read and thought about it. I think the immensity of the situation outweighs the timing and the 'accuracy' of the film editing. It is TV, after all.
Did you see Tammy Faye Messner's appearance on "Larry King Live", days before she died? Sometimes it's best to not be cynical, and not to think about the advertising rates, and just absorb the human element of it all. (my 'word verification' to publish this comment is "oudjs" - just thought I should mention it - thanks Andrew!)

 
At Tue Aug 14, 10:30:00 AM , Blogger Ishouldbeworking said...

I'm in full agreement with Clair and domboy. I think the furore about this film effectively managed to neatly distract from the point of it, which was to document and raise awareness of the impact of Alzheimer's. Because of the circling vultures waiting to pounce on Paul Watson, eleven years of his work and dedication were very nearly rendered pointless.

That said, I couldn't watch it either. My Mum had Alzhiemer's and died on Millenium Eve - a while ago now, but not quite enough to blunt the edges. I also know that for much of the time when she was ill, I was neither strong, selfless noble nor patient, as Barbara seems to have been.

 

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